As we’ve been posting for Spina Bifida Awareness Week Stephen and I thought we should repost my very first blog from two years ago which was about my journey with Hannah’s diagnoses. In March 2003 we discovered I was pregnant. We were really excited we had already a son Adam who was 8 months old. We wereContinue reading “The Butterfly”
Tag Archives: hydrocephalus
Life as an Additional Needs Mummy
I am a mummy to three amazing children one of which has additional needs and relays on me for her personal care. I love being a mum and I’m really enjoying watching my teenagers turn into young adults. I look at them with so much love and pride that sometimes I think I could cry.Continue reading “Life as an Additional Needs Mummy”
Detox Day
Fionnuala suggested the other evening that I undertake an endurance challenge for January 2018. It involves running 150 miles during the month and logging them on my Garmin watch. At the end of the month I e-mail the challenge organisers a screen shot of my mileage and, in return, I get a medal and compressionContinue reading “Detox Day”
A Special Day For A Special Girl
Today is a very special day in the Black household. Our eldest daughter, Hannah, is celebrating her 14th birthday. This makes Fionnuala and myself feel very old but it also fills us with wonder as to where all the years have gone. It seems no time since that exciting, frightening day when Hannah was born.Continue reading “A Special Day For A Special Girl”
Marathon Finished
I’ll post a proper review tomorrow but just a few lines tonight to say that I completed the ‘Loop of the Lough’ Marathon today in a time of 3:54:55 getting under my target time of 4 hours. I also raised some money for SHINE Charity in the process. Thank you to everyone who has supportedContinue reading “Marathon Finished”
The 26.2 Mile Turkey Trot
As I’m not the sharpest tool in the box (just ask Fionnuala) it only struck me this morning that the marathon I have been training for (and boring you about) these last few months falls during the Thankgiving Day weekend. This is not celebrated in Northern Ireland but as most of our followers live inContinue reading “The 26.2 Mile Turkey Trot”
The 1% Is A Liar
Yesterday was my last long run before the ‘Loop of the Lough’ Marathon which I am running for SHINE Charity (Spina Bifida and Hydrocephalus) around Strangford Lough, Northern Ireland, next Saturday. The run went well and now it just a matter of keeping things ticking over and continuing my disciplined taper until the big dayContinue reading “The 1% Is A Liar”
Power
The day that we have been waiting for for a very long time has finally arrived and I don’t mean Stephen actually sitting at his desk to start writing his book more importantly Hannah got her new all singing and dancing power chair. The regular readers of our blog will know about all the trialsContinue reading “Power”
The Butterfly
Originally posted on Black Thoughts:
This is my first time blogging, normally it’s my husband’s witty blogs that you read and it looks like I’ve caught the blogging bug which?thankfully?doesn’t require medical attention as?I’ve seen enough of doctors, therapists and hospitals this week.? I want to share a bit of testimony with you about a…
Don’t Give Up
For what seems like forever we have been battling with our local health trust to acquire a new wheelchair for our daughter, Hannah. Hannah is 13 years old and was born with spina bifida and hydrocephalus. She has outgrown her current wheelchair to the extent that it is now dangerous for her to use. SheContinue reading “Don’t Give Up “
PATIENCE/PATIENT
Today we have a guest blogger this is her first time blogging so please be kind to her. Let me introduce you to our daughter Hannah who is 13 years old. Hannah has been off school for 4 weeks now due to a pressure sore on her foot. Hannah loves school and misses her friendsContinue reading “PATIENCE/PATIENT”
Black Thoughts 
You must be logged in to post a comment.