We Need Your Feedback

The blog passed 11,000 followers the other day and it’s growth continues to amaze and delight me. I don’t know why people keep coming back to view, like and comment but I’m forever grateful. At each milestone, I like to ask you guys what you want from the blog in the future. As well as, […]

Life as an Additional Needs Mummy

I am a mummy to three amazing children one of which has additional needs and relays on me for her personal care. I love being a mum and I’m really enjoying watching my teenagers turn into young adults. I look at them with so much love and pride that sometimes I think I could cry. […]

Separate your needs from your greeds

October is Spina Bifida Awareness Month and as most of you know we have been blessed with our very own Spina Bifida Warrior Princess Hannah.  You can read our story about finding out about Hannah’s diagnosis in The Butterfly which was actually my first ever blog.  We of course love everything about Hannah and wouldn’t change […]

Losing The Battle….Winning The War

I am supposed to be running the Longford Marathon in two weeks time. It was the target I set myself after completing the Belfast equivalent in May and some of you may recall I blogged about my intentions at the time. I thought it was a realistic proposition and I could juggle it with all […]

Hannah The Campaigner

We are not protestors by nature but yesterday took to the streets of Belfast with many other concerned parents to protest against plans by the Education Authority to close seven special needs schools in the Greater Belfast area and merge them into three ‘super schools’ which would be created to cater for students with physical […]

Detox Day

Fionnuala suggested the other evening that I undertake an endurance challenge for January 2018. It involves running 150 miles during the month and logging them on my Garmin watch. At the end of the month I e-mail the challenge organisers a screen shot of my mileage and, in return, I get a medal and compression […]

A Special Day For A Special Girl

Today is a very special day in the Black household. Our eldest daughter, Hannah, is celebrating her 14th birthday. This makes Fionnuala and myself feel very old but it also fills us with wonder as to where all the years have gone. It seems no time since that exciting, frightening day when Hannah was born. […]

Marathon Finished

I’ll post a proper review tomorrow but just a few lines tonight to say that I completed the ‘Loop of the Lough’ Marathon today in a time of 3:54:55 getting under my target time of 4 hours. I also raised some money for SHINE Charity in the process. Thank you to everyone who has supported […]

The 26.2 Mile Turkey Trot

As I’m not the sharpest tool in the box (just ask Fionnuala) it only struck me this morning that the marathon I have been training for (and boring you about) these last few months falls during the Thankgiving Day weekend. This is not celebrated in Northern Ireland but as most of our followers live in […]

The 1% Is A Liar

Yesterday was my last long run before the ‘Loop of the Lough’ Marathon which I am running for SHINE Charity (Spina Bifida and Hydrocephalus) around Strangford Lough, Northern Ireland, next Saturday. The run went well and now it just a matter of keeping things ticking over and continuing my disciplined taper until the big day […]

My Big Sister Hannah

My sister is called Hannah she is 13 her date of birth is 10th December 2003. My sister’s full name is Hannah Catherine Black. My sister is special because she is my big sister. When my sister was born she had to stay in hospital for two months because she had Spina Bifida and she […]

Power

The day that we have been waiting for for a very long time has finally arrived and I don’t mean Stephen actually sitting at his desk to start writing his book more importantly Hannah got her new all singing and dancing power chair. The regular readers of our blog will know about all the trials […]

Real Running

The ‘Loop of the Lough’ Marathon is five weeks today and, this morning, I set out on a 20 mile training run. The next 2-3 weeks are the toughest part of the training plan before I cut back the mileage in the final fortnight before the big day itself. This final period of the training […]

The Butterfly

Originally posted on Fractured Faith Blog:
This is my first time blogging, normally it’s my husband’s witty blogs that you read and it looks like I’ve caught the blogging bug which?thankfully?doesn’t require medical attention as?I’ve seen enough of doctors, therapists and hospitals this week.? I want to share a bit of testimony with you about…

Happy Hannah 

As you may have read in previous posts we have been fighting a largely uphill battle for over six months now with our local health trust. The reason? To obtain a new wheelchair for our 13 year old daughter, Hannah. To the point where we had given up all hope of getting one. Given this […]

Don’t Give Up 

For what seems like forever we have been battling with our local health trust to acquire a new wheelchair for our daughter,  Hannah. Hannah is 13 years old and was born with spina bifida and hydrocephalus. She has outgrown her current wheelchair to the extent that it is now dangerous for her to use. She […]

PATIENCE/PATIENT

Today we have a guest blogger this is her first time blogging so please be kind to her.  Let me introduce you to our daughter Hannah who is 13 years old.  Hannah has been off school for 4 weeks now due to a pressure sore on her foot.  Hannah loves school and misses her friends […]

The Butterfly

This is my first time blogging, normally it’s my husband’s witty blogs that you read and it looks like I’ve caught the blogging bug which thankfully doesn’t require medical attention as I’ve seen enough of doctors, therapists and hospitals this week.  I want to share a bit of testimony with you about a small part of my journey […]